I never imagined I’d become the poster girl for paraneoplastic syndrome, but since it is such a rare condition, and rarer still to live with it as long as I have, I’ve become somewhat notable in the world of rare conditions. Last October I posted an article from Mayo Clinic on my blog, and now I am the subject of a “patient spotlight” article from Mayo Clinic Laboratories. It’s a wonderful article, informative and interesting. I can’t believe that it’s been 9 years since my diagnosis. I am forever grateful to Mayo for doggedly testing and researching until they identified my issue and for sticking by me to keep me going.

A tenacious fighter, Joy Carol never lost hope that a mysterious condition that had stripped her of her ability to move would be identified. Hope turned into reality when a Mayo Clinic Laboratories test identified the cause of her illness and opened the door to successful treatment.

Read the whole article from Mayo Clinic Laboratories here